FCS Announcement

We are collecting anonymised information on patients with familial chylomicronaemia syndrome (FCS)/multifactorial chylomicronaemia syndrome (MCS) as a service evaluation & quality improvement project.

The project aims to improve understanding of natural history of FCS and to validate the use of FCS scoring algorithm. The project is approved by Manchester University and aims to support clinical decision making and patient outcomes.

If you are a clinical professional or a patient, we invite you to participate in this important initiative. By gathering robust, real-world data, we can collectively work towards better diagnostic tools and therapeutic pathways for those affected by these complex conditions.

How to participate

Further details regarding data submission and privacy protocols can be found on our main project portal. We ensure all data is processed in full compliance with GDPR and medical data protection standards.